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| Armand Legault,
an employer member of the Connecticut Association of Personal
Assistants, and personal assistant Oleeta Igar of Los Angeles |
In a striking display of the power and promise
of the growing movement to improve job quality for direct-care
workers, more than 130 long-term care workers, consumers, employers
and advocates gathered in Washington, D.C. for the Direct Care
Alliance’s national conference September 18-20.
The conference tagline was “creating unity
for a valued direct care workforce,” and it fulfilled that
promise. The days were long and full, but attendees gained energy
as time went on, buoyed up by the presence of so many committed
and creative colleagues all working toward the same goal. “The
energy of Iowa CareGivers Association delegation – 15 members
strong – was especially appreciated, along with members
of all the other worker associations who were there,” says
CNA John Booker, the president of the National Association for
Direct Care Workers of Color. “Each group fed off the energy
of the others.”
Nearly half the attendees were nursing assistants,
home health aides, personal care attendants and other direct-care
workers, most of whom arrived with colleagues from a worker association.
Using leadership skills honed by their associations, the workers
played a prominent role throughout the conference, asking probing
questions and sharing their insights in both formal and informal
exchanges. Other attendees included leaders and staff of organizations
that employ direct-care workers, consumers of long-term care
and personal care services, and a sprinkling of union representatives
and others who work to improve job quality for direct-care workers.
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| CNA John Booker
addressed direct-care workers at their opening session |
The conference opened with a lively interactive
session just for direct-care workers. After a call-and-response
introduction and some ice-breaking exercises, facilitators MariaElena
Del Valle, Peggy Powell, and Sara Joffe of the Paraprofessional
Healthcare Institute led discussions of what traits distinguish
a leader and what changes are needed to improve direct-care jobs.
Booker then urged his fellow workers to speak up at the conference
and elsewhere, defining themselves before others define them. “We
need to get together as a group and name ourselves,” he
told the responsive audience.
Other attendees joined the direct-care workers for a dynamic opening
session featuring song, dance, poetry, and moving testimonials from three
long-term care stakeholders. Former nursing home administrator Tom Zwicker
talked about the difficulty of turning around an underperforming nursing
home and the heartbreak of losing all of his family’s savings in
the process. CNA Roger Parrish talked about the circumstances and values
that had led him to choose his life’s work and some of the things
he learned during 42 years as a nursing assistant. And Anna Fay, a long-term
care consumer who is executive director of Consumer Choices of New York
City, paid tribute to the personal care assistants who had made it possible
for her husband to live out his last years at home after developing multiple
sclerosis.
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| Jeni Gipson
of the National Network of Career Nursing Assistants recognized
workers with 20 years or more of service |
Interactive sessions on topics like creating
avenues for worker participation and building cross-stakeholder
coalitions alternated with special events. Sunday opened with
a poster session in which worker associations and other groups
explained their work and ended with Heartwork, a powerful “theater
of witness” piece performed by the six home health aides
and nursing assistants who created it.
Donna Calame, the executive director of the
San Francisco IHSS Public Authority, said she had attended other
DCA conferences, but none that so fully addressed the needs and
concerns of consumers and workers in consumer-directed care. “There
was a recognition that that is an arena that has its own unique
issues, and that it’s really an important area to develop,” she
said afterward. “I really like the fact that a national
organization is pulling together a variety of stakeholders that
understand that and will be trying to communicate the whole spectrum
of service needs to policymakers.”
“It’s just a great group of people,” Calame
added. “I’ve seen Heartwork on tape several
times, but it’s really a treat to see it live.”
In addition to the networking and idea exchange
between long-term care constituents, the conference offered insights
into the political forces shaping long-term care policy. In the
closing plenary session, Andreas Frank of the U.S. Department
of Health and Human Services and Stephanie Swirsky of the U.S.
Department of Labor joined health policy and workforce consultant
Carol Regan to discuss the forces that keep worker wages and
health insurance coverage low. The next morning, several attendees
visited Capitol Hill to talk to their representatives about the
link between job quality and care quality and the need to improve
wages, benefits, and working conditions for direct-care workers.
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| More than a
dozen groups from across the nation participated in Sunday
morning's poster session |
“The conference was a wonderful experience
for me and our staff. Our visit with our congressional staffer
went quite well,” Rebecca Hutchinson, president of Quality
Care Partners, a New Hampshire home care agency, told DCA Executive
Director Patsy Harris. “I particularly appreciated the
time I had to sit with other providers during Peggy [Powell]'s
workshop and the networking opportunities that mealtimes provided,” Hutchinson
added.
The glacial pace of change in our long-term
care system can be discouraging for the people working to improve
direct-care jobs, so advocates need to know that they aren’t
alone. “It was so great for the Maine PASA representatives
to meet and hear [fellow worker advocates] John Booker, Roger
Parrish and Lorrene [Maynard], and to see the level of conviction
and optimism out there for worker issues,” said Elise Scala
of the Maine Personal Assistance Services Association.
–Elise Nakhnikian
Paraprofessional Healthcare Institute |